Due to her recent neurological changes, Kai can no longer close her left eye. To help her sleep, she needs to wear mitts, be swaddled, and have her eye taped shut. I use to have to do this right after her tumor resection surgery. I thought she would become angry at me tonight when I bundled her up, but she is actually sound asleep- Finally. I hope she gets a good nights rest so we can conquer tomorrow. ✊💥 


#kaican #fightforacure #gogold #graymatters #atrt #braintumor #warrior (at Seattle Children’s Hospital)

Due to her recent neurological changes, Kai can no longer close her left eye. To help her sleep, she needs to wear mitts, be swaddled, and have her eye taped shut. I use to have to do this right after her tumor resection surgery. I thought she would become angry at me tonight when I bundled her up, but she is actually sound asleep- Finally. I hope she gets a good nights rest so we can conquer tomorrow. ✊💥


#kaican #fightforacure #gogold #graymatters #atrt #braintumor #warrior (at Seattle Children’s Hospital)

I had a chance to run back to check on our room (at the Ronald McDonald House), and Kai had recieved letters! 💌 Including cards sent from friends of Lula & Emily @emilyjanelynch 💓💓💓 They were a great read before bedtime 💗


#love (at Seattle Children’s Hospital)

#athousandwords 

#kaican 

#gogold #graymatters #braintumor #atrt #warrior 

It’s strange that Kai is losing her eyebrows. She never did during her whole treatment. But her eyelashes and hair has started to grow back. 

You can really see the change in her face and her eyes in this photo. 
It’s hard to see her so exhausted, frustrated, and unmotivated. 

She gets frustrated easily because she use to be able to keep up with the kids who were older than her, not she cannot even sit up on her own. She’s completely aware and comprehensive mentally, but does not have the physical capabilities to express herself. I dreamt that she spoke to me. All she said was, “Mama, I love you.” I can’t wait for the day that she is able to communicate without it beings challenge for her. 

#kaican #fightforacure #gogold #atrt #warrior (at Seattle Children’s Hospital)

#athousandwords

#kaican

#gogold #graymatters #braintumor #atrt #warrior

It’s strange that Kai is losing her eyebrows. She never did during her whole treatment. But her eyelashes and hair has started to grow back.

You can really see the change in her face and her eyes in this photo.
It’s hard to see her so exhausted, frustrated, and unmotivated.

She gets frustrated easily because she use to be able to keep up with the kids who were older than her, not she cannot even sit up on her own. She’s completely aware and comprehensive mentally, but does not have the physical capabilities to express herself. I dreamt that she spoke to me. All she said was, “Mama, I love you.” I can’t wait for the day that she is able to communicate without it beings challenge for her.

#kaican #fightforacure #gogold #atrt #warrior (at Seattle Children’s Hospital)

Kai was finally able to get some sleep under her TULA hood. Just look at how exhausted and slumped over she is. Our nurse switched out Kai’s feeding machine to a machine with more battery life, so that we could unplug her pole and escape the cancer unit 🏃 We went to visit Sarah and Kyle @prayersforellie Please continue to send good vibes to our little love Ellie! 

#prayersforellie #gogold #graymatters #kaican #fightforacure #babywearingforever #tulalove

@tulababycarriers  (at Seattle Children’s Hospital)

Kai was finally able to get some sleep under her TULA hood. Just look at how exhausted and slumped over she is. Our nurse switched out Kai’s feeding machine to a machine with more battery life, so that we could unplug her pole and escape the cancer unit 🏃 We went to visit Sarah and Kyle @prayersforellie Please continue to send good vibes to our little love Ellie!

#prayersforellie #gogold #graymatters #kaican #fightforacure #babywearingforever #tulalove

@tulababycarriers (at Seattle Children’s Hospital)

Kai spiked a 104 fever this morning. We are waiting for her primary Neuro-Oncologist to come talk to us about her weakness and changes in her face. Kai is still having trouble opening her right eye, and she can only close her left eye half way. She keeps pulling off the eye patch, so she is getting terrible sleep. Her Occupational Therapist set up a padded high chair so that Kai could play with her toys. It’s the most she has sat up in days, but she really enjoyed it. 

We are thinking good thoughts for Ellie & Sarah @prayersforellie. Ellie is having her fourth brain surgery today. 

#prayersforellie
#gogold
#kaican  (at Seattle Children’s Hospital)

Kai spiked a 104 fever this morning. We are waiting for her primary Neuro-Oncologist to come talk to us about her weakness and changes in her face. Kai is still having trouble opening her right eye, and she can only close her left eye half way. She keeps pulling off the eye patch, so she is getting terrible sleep. Her Occupational Therapist set up a padded high chair so that Kai could play with her toys. It’s the most she has sat up in days, but she really enjoyed it.

We are thinking good thoughts for Ellie & Sarah @prayersforellie. Ellie is having her fourth brain surgery today.

#prayersforellie
#gogold
#kaican (at Seattle Children’s Hospital)